AUSNBled
Bleeding disorders of unknown cause
AUSNBled is a voluntary register of individuals with bleeding disorders of unknown cause (BDUC). The purpose of the registry is to investigate and improve the long-term clinical care and treatment of individuals with bleeding disorders.
The registry collects general demographic information, bleeding and treatment history, and, where possible, available medical and diagnostic information from treating health professionals.
These data are utilised to support ongoing research with the aim to improve our understanding of treatment options and outcomes. Participants contribute valuable insights that may lead to advancements in the diagnosis, management, and care of bleeding disorders.
Professor Ross Baker
MBBS BMedSc FRACP FACP FRCPA (Chair)
Founding Director of PBI, Consultant Haematologist Professor Ross Baker has led large international clinical trials and clinical research in blood disorders including thrombosis, leukaemia, lymphoma, myeloma and haemophilia. He has authored over 100 papers in peer reviewed journals and is a renowned international speaker. He is a founding director and secretary of the Australasian Society for Thrombosis and Haemostasis and served as scientific advisor to the World Health Organisation on DVT in 2001.
At the forefront of advancing care and understanding, our mission is to explore the complexities of bleeding disorders and improve outcomes for individuals living with these conditions. From hemophilia to von Willebrand disease and rare platelet function disorders, we are dedicated to unlocking the science behind these challenges through groundbreaking research and collaboration.
Join us in our journey toward a future where bleeding disorders are no longer barriers to a fulfilling life. Explore our site to learn more about ongoing studies, patient stories, and ways to get involved in shaping tomorrow’s breakthroughs.
Together, we can make a difference.